Is OFF everything but her leads that monitor her oxygen saturation, heart rate, and respirations!!!
She has nothing flowing in to her body for the first time since she was born! There is nothing helping her to breath. She is happy and alert when she is awake and peaceful when she is asleep. Her chest is not pumping hard just to get the next breath. And for that, we are thankful.
Madelyn does still have a few periods where her respirations drop along with her oxygen saturation. They do not drop enough to set of the alarms on her monitor, just the alarms in mommy and daddy's hearts. We are learning to be more comfortable and less jumpy during those periods and realizing just how far she has come. She is such a good eater and seems to be putting on a little weight already! Her AMAZING doctor is just monitoring her progress at this point and running a few labs to make sure everything still looks good. She thinks we may go home on Monday. That terrifies me. Over the last 9 days Luke has constantly reassured me that she would be ok...that we would get to hold her again...that one day soon Madelyn would come home with us. His confidence was unwavering when my mind tried to tell me otherwise. And soon she will be coming home.
Madelyn does still have a few periods where her respirations drop along with her oxygen saturation. They do not drop enough to set of the alarms on her monitor, just the alarms in mommy and daddy's hearts. We are learning to be more comfortable and less jumpy during those periods and realizing just how far she has come. She is such a good eater and seems to be putting on a little weight already! Her AMAZING doctor is just monitoring her progress at this point and running a few labs to make sure everything still looks good. She thinks we may go home on Monday. That terrifies me. Over the last 9 days Luke has constantly reassured me that she would be ok...that we would get to hold her again...that one day soon Madelyn would come home with us. His confidence was unwavering when my mind tried to tell me otherwise. And soon she will be coming home.







I cannot begin to express our gratitude to our Father, our family, our friends, those we have never met but feel a connection to through their prayers, and to the amazing doctors, nurses and respiratory therapists who have looked after our little one as if she were their own!
We are truly blessed beyond words...
*Kathryn
I have been following your story, and it shows the strength and power of God even in delicate times. I am SO blessed to know this story, I am so happy for you guys. I will continue praying for you and your baby girl.
ReplyDeleteI am so thrilled for all of you! Do not be anxious in anything, sweet friend. Jesus has your little one in His capable hands as He has shown over and over again! I love the picture of your husband holding her in his hands--she looks so small and safe with her daddy. Imagine that times a million with Jesus!
ReplyDeleteThere is nothing sweeter than a Newborn, and yours is pretty darn cute! I am so happy that she is doing so well and will get to go home soon. Praise the Lord, He is Good!
ReplyDeleteLove,
Audra
Where does all that "spunk" come from I wonder?? Hmmm! What a blessing she has already become in your life!! We can learn SO much from our children, if we allow it. I am so happy for you guys! I can imagine the anxious feelings of taking her home. You are wonderful parents! Thank you so much for sharing your pictures and stories....not one goes by that I am not touched to tears!! Looking forward to the next update!!
ReplyDeleteSooooo good to read this--so good. I will continue to pray for her, of course! I can't help but wonder how many people are like me; I wake up and think "I need to check Luke and Katherine's blog!" This was a wonderful read today. Really, thank God. And, as a side bar, you should frame the picture of your soapy hands and her foot as you're giving her a bath... absolutely beautiful.
ReplyDelete-Kim
I am so happy to hear (and see!) the wonderful news. I emailed your MIL about doing a complimentary photo session of your family of 3. I would be honored to capture a part of your story.
ReplyDeleteAbsolutely love all those new pictures!! Still praying for you guys, and hoping you will get to go home Monday! Can't wait for our kids to get to play together!!
ReplyDeleteThe Skinner's