Madelyn's doctor came in this morning and based on her last blood work decided that it was time to try something else. He felt like although she was not necessarily getting much worse, she was not making any progress either. She was still breathing very rapidly and becomes easily agitated. The rapid breathing over this long of a period of time will eventually cause fatigue. The strip on the lungs was still very present and he gave us the impression he thinks it is pneumonia. They started her on a CPAP machine (continuous positive airway pressure) to help her breath more deeply and thus slow her breathing down. She has been fighting it now for the last hour or so. When she fights it, it does not work and her oxygen levels drop dramatically. Our nurse this morning is absolutely awesome. She encouraged us to let her know we are there. I asked her if we could play some music that she likes. Of course it had to be Kari Jobe. Her Papa went to get the CD and within 5 minutes of continuous touch and listening to the music she was calm, breathing deeply, and her oxygen levels began to rise. I left on that note so that I could get a quick update in and some clean clothes on. Just in case I have not posted the words to the song "Healer" enough times in previous posts (that was sarcastic)...
You hold every moment
You calm my raging seas
You walk with me through fire
And heal all my disease
I trust in You
I trust in You
I believe You're my healer
I believe You are all I need
I believe You're my portion
I believe You're more than enough for me
Jesus, You're all I need
Nothing is impossible for You
Nothing is impossible for You
Nothing is impossible for You
Nothing is impossible for You
This is such a powerful song and now carries a whole new meaning. It's almost as if God was preparing us for these moments while she was still in the womb. Her love for this song and the others on the CD seems silly if you think about it...but she really responds to it.
Pray for Madelyn...Luke and I know she is going to get better...we just want her to make some progress. Waiting is hard to do.
*Kathryn
Pray for Madelyn...Luke and I know she is going to get better...we just want her to make some progress. Waiting is hard to do.
*Kathryn
Oh Kathryn, I know how hard it is to see your child suffer with any kind of health issue. All three of mine have had one struggle or another in their lives. It's hard to stand back & not be able to do something fix it for them. Lots of hugs & prayers coming your way!
ReplyDeleteDear Kathryn, I am so glad you got the music-I wanted to call and suggest it myself. Trust your instincts! You and Luke are prepared in ways you haven't even begun to realize. We are all so appreciative you are able to keep us informed-we are praying for Madelyn and your whole family. Love you,Sharon
ReplyDeleteMusic is such a blessing! Maybe she will be musical like Luke...can't wait to see them playing guitar side by side! Nathan and the boys and I are praying for your little family of 3. Please, please let us know if we can bring you anything or do anything at all for ya'll. We love ya'll and we are so blessed to have you as friends.
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